Travere Therapeutics

Born before the advent of newborn screening, Pam went more than 50 years without a correct diagnosis. Following years of complications from this rare metabolic disorder, Pam’s own research led to her diagnosis of classical #homocystinuria (HCU). “The symptoms – blood clots, strokes, eye problems, back problems – all of a sudden, I thought, I bet this is what I have had all my life.” Today we recognize World Homocystinurias Awareness Day and the challenges of a delayed diagnosis in Pam’s Rare Life story. #InRareForLife #RareLife https://lnkd.in/gvgFMajt

This time of year calls for some fun in the sun! We’ve kicked off this springtime with our first food truck lunch of 2024! At Travere, we value our team members and last week we had the opportunity to invite our San Diego locals and board members to headquarters to enjoy delicious food and great company. #InRareForLife #HereAtTravere

To all our friends in the #RareKidneyDisease community, it was a joy and an inspiration to be with you at the NephCure #nephcurepatientsummit. At Travere, we will keep pushing, exploring, testing, and working to bring hope to people living with RKD. #InRareForLife

Living with IgA nephropathy (also known as IgAN) looks different for every person. The #RKDandMe community features many people living with IgA nephropathy who have bravely shared their unique experiences to help inspire more empathy and understanding of what it’s like to live with a rare kidney disease or RKD. Today on #IgANAwarenessDay, and every day, we recognize everyone affected by this progressive rare kidney disease. We encourage those who live with #IgANephropathy or who care for someone who does to consider sharing their own story. Visit RKDandMe.com to share your story or hear from others in the #RKDandMe community. #IgANAware #IgANDay #RareKidneyDisease

On IgA Nephropathy Awareness Day we’re celebrating the #IgAN community and the tireless work of Bonnie and Ed, founders of The IgA Nephropathy Foundation. Eric Dube, our president and CEO, shared his thoughts about this 3rd annual #IgANDay in this special acknowledgement.      “The path in #raredisease is not always straightforward or easy -- for those living with it, #caregiving for someone with it, finding others affected by it, or developing medicines for it. The rare disease community is a powerful force and accomplishes life-changing work together. Like so many of us touched by rare disease, our work to bring hope to others living with rare disease is our purpose. Just like Bonnie, Ed and the foundation have done for two decades.” #IgANAware #RareKidneyDisease #InRareForLife  

We are delighted to share 4 abstracts at National Kidney Foundation #SCM24 this week on our research in #RareKidneyDisease, including analyses comparing the effect of sparsentan as seen in the Phase 3 PROTECT Study in slowing kidney function decline versus RAS inhibition in real-world use and in clinical trials in patients with #IgAnephropathy (#IgAN). Check out all our presentations at the Spring Clinical Meetings. At Travere, we are #InRareForLife.

Today is a wellness day at Travere! The weather is warming up this time of year and it is the perfect time to recharge. At Travere, we encourage our team members to prioritize their mental health during this Mental Health Awareness Month #MHAM and find balance during these days away from the office. #WellnessDays #InRareForLife 

Today we announced that we will present nine abstracts in #RareKidneyDisease at the National Kidney Foundation (NKF) Spring Clinicals Meetings #SCM24 and the European Renal Association #ERA24 Congress taking place this month. https://bit.ly/3UrVg7C

Albert Freedman (Dr. Al), psychologist and #raredisease dad, works with families affected by rare disease. This #MentalHealthAwarenessMonth, we bring you some of Dr. Al’s observations from his life and his work that he shared with us earlier this year on Rare Disease Day. “In each phase of life, people with rare disease face the same challenges we all do, but with an added, unusual layer. Where do I fit in in the world, and how long will I live? Your life is flipped upside down when you receive the news that you are different from everybody else, and that you may have a life-threatening condition. You have to adapt to a whole new reality. That comes with uncertainty. And with the uncertainty comes anxiety, and sometimes isolation. The need to manage uncertainty cuts across all rare diseases. Your life is different from the life you thought you’d have. Finding other people launched into the same twilight zone as my family, who understood the acute stress, the acute medical condition – that was important to me. A connection to others who can relate to your experience is hard to find because the disease itself is rare, but as I work with families across the rare disease world, that is something we have in common. Connection and engagement. When you connect with others, it is very empowering, and you can learn what you need in order to move forward. You can have hope.”

This afternoon in our Q1 earnings update we shared that the FDA has granted Priority Review for our sNDA to convert FILSPARI® (sparsentan) from accelerated approval to full approval for the treatment of IgAN in the U.S. #InRareForLife Press release: https://bit.ly/4b4KlYp